Last month

I am tired and weak

I wonder what my life would be like if I didn't have Wolframs Syndrome

I hear my life ticking away as I lie in bed

I see people preparing to say goodbye to me

I want to have a long, happy, and healthy life

I am tired and weak

I pretend I am not worried that I will not return to normal

I feel like I am dying

I touch lots of medical equipment on me

I worry that my life is going to end forever

I cry because I do not want to leave this earth and all my family and friends

I am tired and weak

I understand that I can not control what happens to me

I say that I am lucky to be alive

I dream about waking up completely back to myself and aware of what is going on again

I try to stay awake even though I am exhausted

I hope I will live a long and happy life

I am tired and weak

The amazing recovery

I am grateful and a true miracle

I wonder why I was so out of it for a month

I hear applause from people who were so worried about me

I see myself graduating high school, taking online college classes, and becoming an author

I want to be successful in whatever I choose to do

I am grateful and a true miracle

I pretend I don't have any complications from Wolframs Syndrome

I feel like the luckiest girl in the world

I touch layers of love

I worry that I might become unaware again

I cry when I feel like I am losing the battle against Wolframs Syndrome

I am grateful and a true miracle

I understand that there are plenty of people who have it worse off than I do

I say that my life is priceless and I am lucky to be alive

I dream that nothing bad will happen to me again and I will never end up in the hospital again

I try to stay positive, even when life seems to be too much for me

I hope I graduate from high school with a diploma

I am grateful and a true miracle

The way I feel about myself

I am strong and kind
I wonder what it would be like to have perfect vision again.
I hear people talking.
I see the shadows of people in front of me.
I want to tell people what it is like.
I am strong and kind.

I pretend I can see everything in front of me.
I feel understood by people.
I touch lines of braille.
I worry about my looks.
I cry for my auntie.  I am strong and kind.

I understand that life is not always fair.
I say I am equal to my peers.
I dream I am in New York again.
I hope other people understand me the way I understand them.
I try to be polite.
I am strong and kind.