Ehlers-Danlos Syndrome

November 8, 2009
By bigandscarydinosaur BRONZE, Stone Lake, Wisconsin
bigandscarydinosaur BRONZE, Stone Lake, Wisconsin
1 article 0 photos 0 comments

I walk on these weakened legs
and collapse to the floor.
I laugh at the jokes about me
but I can't take anymore.

It's hard to grasp
knowing this is how I'm going to be,
knowing that this body
will always be against me.

I can't properly use my arms,
and most likely never will,
and because of the damage done
their tremors never still.

My life is full of doctors,
surgeries, and pain.
Most never get to hear
the story I retain.

Those who daire to listen
will never quite understand.
I don't really expect them to
because no one really can.

I've got Ehlers-Danlos Syndrome,
a rare and lifelong fight.
My future's unpredictable
But I know I'll be alright.


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This article has 3 comments.


on Feb. 18 2015 at 4:49 pm
Myka_Moon BRONZE, Denham Springs, Louisiana
3 articles 0 photos 2 comments
I love this. My boyfriend has type 3 and I've been trying to learn more. I'm also writing a paper on it too. So I can inform other people, because I had never heard of it until I met him.

on Nov. 2 2012 at 3:25 pm
it made me cry the first time i read it because i have the same thing and its nice to see someone with the same thing as me.

MargaretC GOLD said...
on Jan. 12 2012 at 12:06 am
MargaretC GOLD, Hopewell Jct, New York
14 articles 0 photos 4 comments

Favorite Quote:
Disability is a matter of perception. If you can do just one thing well, you're needed by someone.
Martina Navratilova

This was wonderfully written. It is always great to hear about other teens with EDS. I am guessing you have type 3? Ah.... wonderful EDS... Isn't it annoying how no one seems to understand/believe you? Well, great poem. Made me feel better, knowing that someone else out there has it to, and is suffering the same way i suffer.




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